03 November 2014

The little things

CF is really kicking my ass just now.  I've been on this earth for a long time and I wonder when I'm ever going to learn that I can't graze.  I mean grazing as in picking/snacking at food.  Just normal things for a lot of people and something you might take for granted.  I can't do that, well I shouldn't.  I've had a upset tummy recently as well as all the other things. People who suffer from Crohns disease, IBS, Coeliac disease and the countless other digestive disorders that's out there.  I feel your pain.

I've had a sore stomach, bloating, cramping, wind, constipation, diarrhoea, hot and cold sweats and I've been feeling lethargic.  As you know the human body is a finely tuned machine and the symptoms I've described is evidence that the digestive system is experiencing trauma. Something people with Cystic Fibrosis suffer with because another element of the disease is that the digestive system doesn't function properly.  Enzymes need to be taken orally at the same time as food to digest the food.  It's pretty much a manual system.  Let your concentration slip and you will pay.  Like everything else there are varying degrees of severity.  Some people will need to take 1-2 tablets with meals, some like me might take 11-12 with meals.  As the pancreas loses function you can also end up being diabetic, but that's another story.

Imagine going to a party.  Oh you're gonna be one party animal if you have a condition that relies on you being sober and alert!  Let's think of a scenario. Would you be able to relax knowing you had to make a mental calculation of each mouthful of food you had from a buffet or bowl of crisps that were on your table?   Then, make a quick calculation, type of food+volume of food=number of tablets. Did I mention you can't just swallow them all at the start or at the end? Gets trickier does it.  What I've learnt over the years is that I have to avoid the bowl of crisps on the table and wait until the buffet is served.  I then go get a full plate of food. Full plate of buffet food x what type of food = amount of tablets.  Eat the food and and take the tablets during the meal; job done.  You want some more food.  Well you just repeat the steps.

Yes it's not very social but that's life as I know it.  At times though I fall off the waggon.  Usually when I get sick, I am even more forgetful.  I forget I can't graze like everyone else.  The trade off is getting an upset tummy and farting lots, sometimes for days. What I have to do now in this position is fast, not eat, maybe for 2 days.  Clear my system out and start again.  Hoping I will learn from my mistakes and not do it again anytime soon.

There's lots of things in life we take for granted.  Sometimes it's a way of life.  Sometimes it's people.  Appreciate the little things.  

Another blog brought to you from the bath tub.

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